Navigating Dravet Syndrome: A Guide for Caregivers on Rare Epilepsy | Science 37 #clinicaltrials
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Navigating Dravet Syndrome: A Guide for Caregivers on Rare Epilepsy | Science 37 #clinicaltrials
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YouTubeScience 37
We’re counting down to the 2026 DSF Biennial Conference in Orlando on June 25-27, 2026! ☀️ Families, researchers, clinicians, and advocates will all come together for a weekend that strengthens our community and moves us forward. Watch this video to hear why the DSF Conference matters so much to our staff and the families we serve.🦋 From educational sessions and clinical updates to social events, sibling camp, and more — this is where connection and impact meet. 💜 Stay tuned for more info comi
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We’re counting down to the 2026 DSF Biennial Conference in Orlando on June 25-27, 2026! ☀️ Families, researchers, clinicians, and advocates will all come together for a weekend that strengthens our community and moves us forward. Watch this video to hear why the DSF Conference matters so much to our staff and the families we serve.🦋 From educational sessions and clinical updates to social events, sibling camp, and more — this is where connection and impact meet. 💜 Stay tuned for more info comi
682 views9 months ago
FacebookDravet Syndrome Foundation
⏱️⚡ When a seizure happens, every second matters. A Seizure Action Plan helps families, schools, and caregivers respond with clarity and confidence. During Seizure Action Plan Awareness Week (Feb 9–16, 2026), we’re coming together as a community to make sure more children are protected and supported—at home, at school, and everywhere in between. 💜 ✅ Start or update your Seizure Action Plan 👉 https://tr.ee/wvlt4wrrvx Seizure Action Plan Coalition #SAPAW2026 #SeizureActionPlan #EpilepsyAwareness
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⏱️⚡ When a seizure happens, every second matters. A Seizure Action Plan helps families, schools, and caregivers respond with clarity and confidence. During Seizure Action Plan Awareness Week (Feb 9–16, 2026), we’re coming together as a community to make sure more children are protected and supported—at home, at school, and everywhere in between. 💜 ✅ Start or update your Seizure Action Plan 👉 https://tr.ee/wvlt4wrrvx Seizure Action Plan Coalition #SAPAW2026 #SeizureActionPlan #EpilepsyAwareness
531 views5 months ago
FacebookDravet Syndrome Foundation
Effects of Zorevunersen in a Patient with Dravet Syndrome
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Effects of Zorevunersen in a Patient with Dravet Syndrome
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Over $900,000 raised. 400 guests.
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Over $900,000 raised. 400 guests.
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¿Por qué hacer tus prácticas en la Fundación Síndrome de Dravet?
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¿Por qué hacer tus prácticas en la Fundación Síndrome de Dravet?
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YouTubeFundación Síndrome de Dravet
Apoyo Integral para Familias con Síndrome de Dravet 💜
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Apoyo Integral para Familias con Síndrome de Dravet 💜
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YouTubeFundación Síndrome de Dravet
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El voluntariado en la Fundación Síndrome de Dravet deja huella
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YouTubeFundación Síndrome de Dravet
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Etta's story is one we've heard over and over from families living with Dravet Syndrome. Children like Etta, who live with Dravet Syndrome, require 24/7 care for life. 🕒 Dravet Syndrome is a rare, life-long and life limiting neurological condition that causes severe epilepsy and a range of co-occurring difficulties such as problems with mobility, speech and language, cognition and behaviour, and sleeping and eating. Living with this complex condition can make the future seem scary and uncertain
2.7K views8 months ago
FacebookDravet Syndrome UK
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Our goal is to raise awareness, foster understanding, and support the incredible warriors and families affected by Dravet Syndrome. On Dravet Syndrome Awareness Day, it is extra important to help spread the word about this rare disease. 🦋 Dravet Warriors face daily challenges with remarkable strength, resilience, and bravery. Their stories inspire us and remind us of the importance of community, research, and support. Here’s how you can make a difference today: Learn: Educate yourself and other
766 viewsJun 23, 2024
FacebookDravet Syndrome Foundation
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Have your say on Dravet Syndrome research
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YouTubeDravet Syndrome UK
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Every Day in May for Dravet 2026 - Join Dravet Syndrome UK's fundraising challenge
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YouTubeDravet Syndrome UK
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