When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a ...
I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, ...
Growing up with CF, running was never an easy thing for me. Despite that, I dedicated myself to my school’s cross-country team for years and earned a spot on the varsity team. When the chance to ...
I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...
Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...
The Iowa Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your ...
Your transplant team and CF care team can help you think about whether to get listed. Knowing the risks and benefits can help you decide when to get listed. It also helps to understand the factors ...
To be considered for a lung transplant, you must undergo an extensive evaluation at a transplant center. The process can take several days to several weeks, depending on the center. This evaluation ...
Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...